| Responses:
January 20, 2003
How about someone finding a New York Times reporter who will do a reverse take: make the headline-grabbing statistics focus on the risks of not immunizing children. Toward the end of the article, the minimal-to-no risk of autism or any other childhood illness that has been linked to vaccinations could be put in its appropriate perspective (maybe in an easy to read bar graph). I think this would do a great service to the vast majority of Americans who would read such an article and come away reassured about the value of vaccinations.
nancy.kerkvliet
January 23, 2003
The problem Dr. DeGregori mentions exists in areas besides the two he discusses. Other areas include DDT, asbestos, nuclear energy, low-level radiation, dioxin, food irradiation, and many others well known to the world of science and ACSH. The advantages of the activist-media complex have been exploited for more than thirty years, leaving the public horrifically uninformed on these issues, and vulnerable to more fear stories.
This well-nurtured public fear in the US has lead to the diversion of research dollars away from more promising research. Worse, it has led to the diversion of tens of billions spent in the pursuit of small or non-existent risks. Called "Cleanup" or "Superfund" or mitigation work, most of this effort could be done with far less waste, paperwork, risk analysis, permits, reviews, approvals, legal fees, etc.
This has also led to needlessly increased costs of electrical energy to American industry and to citizens. Today, for example, the Japanese build nuclear power plants at one third the cost and one third the construction duration of the U.S. The British are operating the large Sizewell B reactor with one third the staff needed in the U.S. to run the same size plant. Likewise, the French can build such plants in one third to one half the time and operate them with far fewer people.
In refusing to base their actions in solid science, the activists and their media friends have had a major role in creating this tragic waste of billions in the United States.
Michael R. Fox Ph.D.
January 23, 2003
Thank you for an excellent article.
To the author's point that "False fears...force funding for research up blind alleys," I would like to add the following: It is ethically objectionable to expose human subjects to the risks of research participation when the sole apparent "benefit" of the research is essentially to use the data to shut people up (by showing time and again that their groundless pet theory is not true). This enterprise is even more dubious given that certain activists are unlikely to be persuaded by any of the resulting scientific data, since you can never completely and utterly prove that something isn't so.
Elizabeth Woeckner Department of Classics Princeton University
January 23, 2003
Professor DeGregori:
You say, "If sound science isn't in the story, we must flood them with (good) letters to the editor."
The Food section of the Washington Post gushes whenever "organic" grocers, ingredients, or restaurants are mentioned. This is usually just a brief mention or comment that is tangential to the point of the story: a new grocery store, a tasty recipe, or an excellent chef's new venue. It is not clear that direct challenges would be worthwhile when the objectionable passage is a brief comment or aside.
How would you recommend dealing this cultural problem?
John Cross
January 23, 2003
I couldn't agree more with Dr. DeGregori on the lack of evidence supporting the perceived health benefits of organic food. What I find amazing is the myth that organic food is produced without chemicals or pesticides.
If one goes to the USDA-National Organic Program website, it becomes very apparent that organic growers can (and do) use a wide variety of chemicals, including pesticides and antibiotics. The public is being misled by the continued reports in the media that say otherwise. The fact that organic produce has an alarming problem with contamination by pathogenic bacteria is also never reported to the public.
Together, the incorrect statement that organic food is produced without chemicals or pesticides and the non-reporting of pathogenic bacterial contamination of organic food by the media are major deceptions.
Robert Wager Malaspina University College Nanaimo, BC Canada
January 25, 2003
I agree with many of Dr DeGregori's recommendations and observations. I teach science journalism as an option on a UK university journalism degree, and I try and educate my students out of making the kind of mistakes he points out in his article. It is no easy task, however the standard of basic science and math education among my students is appalling.
Blowing my own trumpet a little, I would like to see such a science and especially statistics module in all journalism training courses. It has, more or less, worked; there is nothing that students and most practicing journalists like more than shaking up the status quo a little, and if you can show them the many flaws in pieces written and broadcast by allegedly high-quality news outlets and the way they are manipulated by activists, they really take to it.
No doubt many of my trainees will succumb to the commercial pressures that suppress much challenging journalism (you won't get anything decent on organics in the graveyard of the mind that is the newspaper Lifestyle section; it's just there to expand saleable advertising space). They'll probably get lazier once secure in their jobs, but at least in their heart of hearts they will know better. The tragedy is that most journalists practicing at the moment just do not know they are doing anything wrong.
Barry Blatt
February 5, 2003
Mr. DeGregori failed to mention three very critical points regarding the autism-immunization query.
First, central to this issue is the question whether or not the mercury in vaccines caused the autistic symptoms. Since the mercury additive is not essential to the effective administration of the vaccines and is being phased out of U.S. vaccinations, investigation into its possible connection to the recent autism epidemic should not threaten the national immunization program. I have never met a medical practitioner who cautioned anyone against immunizing children; furthermore, I have never read any reports encouraging parents to avoid vaccines. However, as the parent of a child with autism, I am glad that the media coverage of this issue is forcing the vaccine manufacturers to answer to the public.
Second, the mercury additive was not safety tested before its insertion into vaccines and has never been tested. In fact, the vaccine safety testing to which Mr. DeGregori refers was limited to reactions immediately following the vaccines. Until the recent Congressional investigation into the possible mercury-autism connection, no one (including the FDA) had ever considered the possible long-term effects of injecting infants with mercury. To this day, no agency or private company has published any reports about the cumulative effects of injecting so much mercury into newborns and toddlers. Without these tests, we won't be able to identify which children may be more genetically susceptible to mercury/vaccine injury including, but not limited to, autism.
Third, autistic children, if vaccine damaged, have no recourse or source of funding for treatment. Even if the vaccine-autism connection is firmly established, under the current state of the law, these children have no means of obtaining critically needed medical attention and rehabilitative services. The current vaccine injury compensation program, which was designed to help provide money (and therefore medical care) to children damaged by vaccines, requires parents to file claims within three years of any sign of vaccine damage. Most of the children now being diagnosed with autism received their first doses of mercury-containing vaccines within hours of their births. Those same children are rarely diagnosed before the age of three. Therefore, even if parents filed claims immediately following diagnosis, the claims would be barred. I know of no one in my wide, growing circle of friends with autistic children who could have filed within the three-year limit.
Where does that leave the families struggling to overcome such a debilitating disease? Nowhere. Private health insurance will not cover services related to autism. And, despite the mountain of evidence attesting to the significant benefits of providing early, intensive rehabilitative therapy known as Applied Behavior Analysis (47% of children can attain full recovery), most states refuse to provide help to these children through federal/state Medicaid programs. Furthermore, the federal government has failed to provide any help for these children on its own initiative. If autism _is_ triggered by vaccines mandated by government programs, and the state and federal governments are doing nothing to help these children, then it is critical to highlight the _possibility_ of a link, even if one assumes Mr. DeGregori to be correct.
Mr. DeGregori also missed what is perhaps the most important point (though not unique to the autism issue) that the media stand in the strange position of outsider/player in our system of government. It is critical to encourage the media to report the positions on both sides of an issue. This is especially true in the case of a highly controversial issue. Why? Because such articles often give voice to those without political clout, without the ability to speak for themselves, and/or without the financial means to force an issue into the spotlight. As the exhausted parent of a child with autism, I am grateful that members of the media persist in covering this issue.
I don't know whether or not the mercury in the many vaccines given to my son caused his autism. However, I am very glad this issue has received so much media attention. Without that attention, I would never have learned about the emphasis on mercury poisoning. Perhaps now the vaccine manufacturers will conduct safety tests on the mercury additive and we will know for certain whether or not there is a cause-and-effect relationship. Until then, I, for one, am reserving judgment.
Sincerely,
Elizabeth Jones
DeGregori replies:
The anguish of a parent is evident in the letter of Elizabeth Jones. It is an anguish that I as a parent and grandparent appreciate and try to understand. But I also appreciate the anguish of parents at the loss of a child's life because they failed to have their child immunized from fears of harm based on an anti-modern ideology, not on scientific evidence.
Being an economist and not a medical doctor, I checked my facts with a variety of those with the appropriate scientific expertise. On the basis of the evidence available to me at the time and which has since been reconfirmed by several authorities, mercury is no longer used in the vaccine (and not simply "being phased out") and there has been no diminution in new cases of autism. More important, even though mercury is no longer being used, there are many groups advising parents not to immunize their children due to unfounded fears of vaccine-induced illness, including autism. These "consumer" and "parents" groups use autistic children and their understandably angry and frustrated parents as tools to further an ideological agenda that is doing great harm to children. I am surprised that Ms. Jones is unaware of anti-immunization groups. I assure her they exist, and tragically their influence and the harm that they cause is growing. The fact that she has "never met a medical practitioner who cautioned anyone against immunizing children," ought to clearly tell her where the science on the subject is.
If repeated studies found no harm from the immunization, that would clearly mean that neither the vaccine itself nor the "mercury additive" were causing harm. In any case, the mercury issue is now moot and the real question is whether parents should be frightened today into not having their children immunized thereby putting them and their siblings at far greater risk of serious illness or death. This was the central point of my article. I had no quarrel with the researching and writing the newspaper article that I was criticizing. In fact, I had praise for the professionalism of the effort. My criticism was for failing to make clear the risks from not being immunized, an issue that Ms. Jones does not address in her letter. I am not opposed to research on the safety of vaccines, but the continued demand for more and more studies when those already performed overwhelmingly affirmed the safety of the vaccine has a cost in research that is not being carried out that might find a way to cure or mitigate the condition of autism a much better way to help Ms. Jones' son.
The financial issues mentioned in her letter were not raised in my article. For some vaccines, there is a very small but known risk, which is often many thousand times less than the known benefit from it. In these cases where the immunization is compulsory and there are positive externalities herd immunity it makes sense and would not discourage use if there was a very small premium on the cost to create a fund to adequately compensate the few clearly definable victims. But where there is no evidence of harm from the vaccine, to place the burden of compensation on the provider would discourage research and development of new or improved vaccines, at a cost in illnesses not prevented and lives not saved.
I do not know why "private health insurance will not cover services related to autism," but it certainly makes more sense to make the case for private health providers to offer policies that provide coverage for autism and other childhood maladies that may not now be covered. I certainly would buy one for my grandchildren if the premiums were based on realistic risk factors not because I fear for the safety of vaccines or other medical interventions but simply because, however much modern science has reduced risk for children, it is not zero and never can be.
Editor's note: ACSH's nutrition director, Ruth Kava points out that according to a recent New York Times article, there has been an increase in polio in India because of groundless parental fears about vaccines. Apparently, Muslim parents are being told the polio vaccine is a Hindu plot to render Muslim children infertile. In trying to err on the safe side, the parents have made their children vulnerable to a real danger. |