To underscore how important the battle for its eradication still is, misperceptions are clarified and key aspects of the inherited illness are addressed here.
rare diseases
Childbirth is an unpredictable, sometimes traumatic event – in even the best of situations. Fortunately, most babies do quite well. Now, imagine having a condition where the act itself causes innumerable bones to break, making it life-threatening.
And, the award for best promoting public health and being a patient advocate goes to ... musician Ed Sheeran!
The actor and musician knows how to convey a message that effects medical change, helped in part by his visit top be with sick kids at Children's Hospital Los Angeles. Now, let's see if Hollywood follows suit.