To underscore how important the battle for its eradication still is, misperceptions are clarified and key aspects of the inherited illness are addressed here.
Childbirth is an unpredictable, sometimes traumatic event – in even the best of situations. Fortunately, most babies do quite well. Now, imagine having a condition where the act itself causes innumerable bones to break, making it life-threatening.
And, the award for best promoting public health and being a patient advocate goes to ... musician Ed Sheeran!
The actor and musician knows how to convey a message that effects medical change, helped in part by his visit top be with sick kids at Children's Hospital Los Angeles. Now, let's see if Hollywood follows suit.