rare diseases

Between increased competition for limited resources in research funding and medical conditions that have powerful and prominent champions, among other issues, it can be especially challenging for rarer conditions like Sickle Cell Disease to remain

The story of Easton Elrod, a 4-year old boy “born broken, everywhere” having sustained over 100 bone breaks in his lifetime was recently trending i

And, the award for promoting public health and being a patient advocate goes to... Ed Sheeran!